– Dr. Harsha K Rajasimha
Intelligence, time, compassion or wealth?
In the last decade, the world has seen an increasing trend of wealthiest people such as Bill Gates, Warren Buffet, Azim Premji, etc. turning into philanthropists or donating majority of their wealth for a cause. As such, philanthropy is primarily regarded as “donating wealth” for a compelling cause. For many people, tax benefit is a motivating factor to donate to a non-profit organization that’s doing a great job with minimal overhead and volunteers’ time and efforts. What seems to be astonishingly less-appreciated are contributions and support extended by millions of volunteers in the form of their intelligence, involvement, voluntary time, or compassion for a cause.
What if every citizen chooses to contribute at least 10% of one of these 4 assets for a cause?
- Valuable time
- Precious intelligence
- Compassionate attention OR
Placing wealth at the bottom of this list strikes the take away that most problems cannot be solved by wealth alone. That wealth can soon extinguish without a good strategy to spend it wisely to earn biggest bang for the buck. Obviously, we need the intelligence of scientists/engineers, the wisdom gained by experience in planning most efficient ways to address specific unmet needs for which the wealth exists. For e.g., Kids in orphanage will be yearning for a caring hug, a listener’s time, and your compassion.
Patients suffering from chronic rare diseases will be looking up to the scientists, technologists, pharma cos. and doctors for affordable therapies that can atleast improve their lifestyle or reduce the disease burden. Patients with rare diseases are regular human beings with a small mutation they may have inherited at birth. Their disability should be accommodated and deserve to be treated with respect in schools, workplaces and other public places.
www.Racefor7.com is a national event organized by the organization for rare diseases India (http://ordindia.org) being held in India on 28th February, around the occasion of international rare disease day, with the goal of raising awareness about the plight of 7 crore Indians suffering from one of 7000+ rare diseases. About half of them do not know which disease they are suffering from. A good proportion of them do not have cure or treatment options. The small proportion of patients that do have a proper diagnosis for a treatable condition are struggling to make ends meet as these therapies need to be imported at exorbitant prices. We are looking for 7000 people to run for 7 crore people affected by one of 7000 rare diseases. Come join us, run with us for the cause, lets show our support, lets show India cares, lets give hope to millions of patients with rare diseases in India.